Identifying Best Practices
for Expanding and Enhancing
the Research Participant Pool
for Genomics Research

The National Human Genome Research Institute (NHGRI) sought to identify evidence backed methods to strengthen its genomics research program by developing tools and best practice recommendations to engage more diverse research participants. This project worked towards a better understanding of how to effectively recruit and retain a variety of research participants essential for driving genomics research forward. Context is always important for determining which techniques might be effective for research participant recruitment and NHGRI sought expert support to identify, document existing best practices, and develop actionable recommendations that could be effectively implemented within the NIH research context. 

Our Goal

Identify evidence-based best practices for recruiting and retaining a variety of participant populations in genomics research and offer actionable recommendations for diversifying the participants.

Our Path to Success

Ripple Effect conducted key informant interviews, literature reviews, and a landscape review to identify and document best practices in recruiting and retaining diverse research participants in genomics. Our team synthesized the findings into an actionable toolkit and supplemental detailed report designed to support the NHGRI research community. These evidence-based, comprehensive resources provided NIH staff with impactful strategies to support continued efforts in expanding and enhancing the genomic research participant pool.

Our Work Smarter Promise

Evidence Building

We delivered a toolkit grounded in data and real-world examples to guide successful recruitment and retention of variety of research participant populations

Multidisciplinary

Our team provided a unique mix of subject matter experts with backgrounds in research and evaluation, public health, and policy expertise to address project needs

High Quality

Our findings directly informed NHGRI best practices and won Ripple a follow-on contract to continue supporting NHGRI

100+

Research Based Evidence Cataloged

17

Best Practices Recommended Across Five Areas

1

Toolkit and Report Developed as Resources

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